Like to talk with other caregivers? Share ideas and strategies? Ask for support during a difficult moment? Help someone solve a problem? Then subscribe to Family Caregiver Alliance's Online Caregiver Support Group.

Huntington's Disease & Movement Disorders Discussion Group

This discussion group is specifically for individuals, family members, friends, and professionals who are involved with Huntington's disease or other movement disorders (such as Parkinson's, Multiple Sclerosis, Freidreich's Ataxia).

Websites of Interest

Caregiver Resource Websites

www.aarp.org/caregiver
Through this site, the American Association of Retired Persons (AARP) provides information for caregivers on issues surrounding long-term care. They have also posted their comprehensive report: Ahead of the Curve: Emerging Trends and Practices in Caregiving Support.

www.alz.org
The Alzheimer’s Association offers numerous resources for caregivers; their website includes fact sheets, resource information, publications, and news items related to Alzheimer’s disease. This site also provides links and contact information for regional chapters.

www.caregiving.com
This site serves as a discussion forum, centered on several sub-categories related to caregiving.

www.caregiver.org
The Family Caregiver Alliance provides resource and referral information to caregivers. The site features online support groups, and provides information on upcoming tele-workshops for caregivers.

www.caregiver911.com
This site is the online homepage for Today’s Caregiver, a magazine devoted to caregiving issues.

www.48friend.com
Friends’ Health Connection is a non-profit educational group that hosts an online support network that links caregivers together on a one-to-one basis.

www.rci.gsw.edu
The Rosalynn Carter Institute for Caregiving provides a forum for professional and informal caregivers. Their focus is on bringing attention to caregiving, and providing information to caregivers. The Rosalynn Carter Caregiving Award is presented annually to an individual for leadership and innovation in caregiving.

www.nfcacares.org
This National Family Caregivers Association (NFCA) site provides information and education to family caregivers and data from the NFCA’s caregiver member survey. It also provides additional links to other sites. Caregivers will find recent articles from the newsletter, tips, and information about the NFCA and its programs.

www.wellspouse.org
The Well Spouse Foundation is an association of spousal caregivers. Their web site offers support in the form of local groups or email discussions, and lists publications and regional activities.

General Interest

Disability Resource's Guide to Prescription Drug Assistance Programs: www.disabilityresources.org/RX.html

The WHO definition of Health: www.who.int/about/definition/en/

How to explain Alzheimer's to children (en Español): www.alzheimer-online.org/novedades/ninos.htm

Does everyone need a living will?: www.abanet.org/media/factbooks/eldq31.html

Legal services for seniors: www.legalservicesforseniors.org

Advocacy

California State Assembly: www.assembly.ca.gov

California State Senate: www.sen.ca.gov

California State Senate: www.leginfo.ca.gov

Consumer Resources

California Care Network: www.calcarenet.ca.gov

Cal Medicare: www.calmedicare.org

Caregiving: www.caregiving.org

Careguide: www.careguide.org

Eldercare Locator: www.eldercare.gov

State Departments

CA Department on Aging: www.aging.ca.gov

Department of Finance: www.dof.ca.gov

Department of Health: www.dhs.ca.gov

Department of Mental Health: www.dmh.cahwnet.gov

Department of Social Services: www.dss.cahwnet.gov

Department of Veterans Affairs: www.cdva.ca.gov

Health & Human Services: www.chhs.ca.gov

Federal

Administraton on Aging: www.aoa.dhhs.gov

Center for Medicare & Medicaid Services: www.cms.hhs.gov

Dept. of Health & Human Services: www.hhs.gov

Department of Veterans Affairs: www.va.gov

Related Organizations

AARP: www.aarp.org

American Society on Aging: www.asaging.org

CA Assoc. of Adult Day Services: www.caads.org

CA Health Advocates: www.cahealthadvocates.org

CA Independent Living Services Council: www.casilc.org

Family Caregiver Alliance: www.caregiver.org

Health Projects Center: www.hpcn.org

The Health Projects Center trains health professionals and provides support for family caregivers.