Online Support Groups
Caregiver Discussion Group
Like to talk with other caregivers? Share ideas and strategies? Ask for support during a difficult moment? Help someone solve a problem? Then subscribe to Family Caregiver Alliance's Online Caregiver Support Group.
Huntington's Disease & Movement Disorders Discussion Group
This discussion group is specifically for individuals, family members, friends, and professionals who are involved with Huntington's disease or other movement disorders (such as Parkinson's, Multiple Sclerosis, Freidreich's Ataxia).
Websites of Interest
Caregiver Resource Websites
Through this site, the American Association of Retired Persons (AARP) provides information for caregivers on issues surrounding long-term care. They have also posted their comprehensive report: Ahead of the Curve: Emerging Trends and Practices in Caregiving Support.
The Alzheimer’s Association offers numerous resources for caregivers; their website includes fact sheets, resource information, publications, and news items related to Alzheimer’s disease. This site also provides links and contact information for regional chapters.
This site serves as a discussion forum, centered on several sub-categories related to caregiving.
The Family Caregiver Alliance provides resource and referral information to caregivers. The site features online support groups, and provides information on upcoming tele-workshops for caregivers.
This site is the online homepage for Today’s Caregiver, a magazine devoted to caregiving issues.
Friends’ Health Connection is a non-profit educational group that hosts an online support network that links caregivers together on a one-to-one basis.
The Rosalynn Carter Institute for Caregiving provides a forum for professional and informal caregivers. Their focus is on bringing attention to caregiving, and providing information to caregivers. The Rosalynn Carter Caregiving Award is presented annually to an individual for leadership and innovation in caregiving.
This National Family Caregivers Association (NFCA) site provides information and education to family caregivers and data from the NFCA’s caregiver member survey. It also provides additional links to other sites. Caregivers will find recent articles from the newsletter, tips, and information about the NFCA and its programs.
The Well Spouse Foundation is an association of spousal caregivers. Their web site offers support in the form of local groups or email discussions, and lists publications and regional activities.
Disability Resource's Guide to Prescription Drug Assistance Programs: www.disabilityresources.org/RX.html
The WHO definition of Health: www.who.int/about/definition/en/
How to explain Alzheimer's to children (en Español): www.alzheimer-online.org/novedades/ninos.htm
Does everyone need a living will?: www.abanet.org/media/factbooks/eldq31.html
Legal services for seniors: www.legalservicesforseniors.org
California State Assembly: www.assembly.ca.gov
California State Senate: www.sen.ca.gov
California State Senate: www.leginfo.ca.gov
California Care Network: www.calcarenet.ca.gov
Cal Medicare: www.calmedicare.org
Eldercare Locator: www.eldercare.gov
CA Department on Aging: www.aging.ca.gov
Department of Finance: www.dof.ca.gov
Department of Health: www.dhs.ca.gov
Department of Mental Health: www.dmh.cahwnet.gov
Department of Social Services: www.dss.cahwnet.gov
Department of Veterans Affairs: www.cdva.ca.gov
Health & Human Services: www.chhs.ca.gov
Administraton on Aging: www.aoa.dhhs.gov
Center for Medicare & Medicaid Services: www.cms.hhs.gov
Dept. of Health & Human Services: www.hhs.gov
Department of Veterans Affairs: www.va.gov
American Society on Aging: www.asaging.org
CA Assoc. of Adult Day Services: www.caads.org
CA Health Advocates: www.cahealthadvocates.org
CA Independent Living Services Council: www.casilc.org
Family Caregiver Alliance: www.caregiver.org
Health Projects Center: www.hpcn.org
The Health Projects Center trains health professionals and provides support for family caregivers.